Happy: A Quest for Life After Death

Tuesday, November 16, 2010

Blink

About two months ago, Mat's hip and lower spine started hurting, and he began having more and more trouble walking. When he couldn't walk more than a few feet at a time because of the pain, he finally said something to Dr. Dave who shipped him directly to radiation. Within a week, Mat was much improved, and by the time the round of radiation was over (round number four, if you're counting), Mat was practically skipping.

I'm exaggerating a little, but there were motorcycle rides, a trip to the Vanson Leathers factory in Fall River for a motorcycle jacket with buddy Joe, and visits with friends. It was great.

It was also short. If you blinked, you missed it.

The last day of radiation was two weeks ago yesterday, and today Mat called his doctor to say ... that his hip hurts so much he can't walk.

After a day in the emergency room repeating the above story to various doctors ad nauseum (I heard it three or four times and I couldn't stay the whole day), Mat has a diagnosis and a plan.

His pelvis is fractured, and so is his sacrum. (What's a sacrum? It's the triangular bone at the back of the pelvis, between the two hip bones.) A scan today showed significant new tumor growth in Mat's bones that are causing the fractures.

That's the diagnosis. The plan is to consider yet another round of radiation (number five) and to attach Mat to a pump that will intravenously administer pain medication as needed. Mat feels fine when he's lying down and even in some sitting positions, so he will be able to give himself a boost of pain meds when he needs to get up and walk.

Mat is spending the night in the hospital to get all this sorted out, and I should be able to pick him up "first thing tomorrow morning." I believe that's hospital speak for "noon."

It seems pretty clear that the chemo he's now on -- a combination of cysplatin and irinotecan -- is an abject failure in the bone tumor growth suppression department. Mat has not seen Dr. Dave yet in this latest installment of As The Cancer Grows, but his inclination right now is to quit chemotherapy.

Mat is seven weeks into this chemotherapy regimen -- the one he has been suspecting will be his last. He has an infusion every two weeks, and it flattens him for days. He doesn't know yet whether the drugs are having any effect on his soft-tissue tumors, but chemo that doesn't keep the bone tumors in check and makes him sick about half the time does not seem worth continuing.

It will be good to have Mat home tomorrow.

13 comments:

amydear said...

Still praying for you and Mat, Kimberly. I hope that whatever may come, you can have the strength you need. Your family has had such a long journey battling cancer, and I'm so sorry. I hope Mat comes home tomorrow and can be in less pain.

Large Marge said...

Kim, you hang in there. It sounds like things are getting even more difficult. I love you for your honesty.

Laurel

Jenn Jenson said...

Thinking of you, Mat, and the boys, and sending my love.

ellen said...

I'll work on getting Mat an IV of tapioca. Stat.

EmilyCC said...

fractures from tumors? ouch!

So sorry to hear all this--keeping you all in my thoughts and prayers, my dear.

Purpletailgate said...

Kimberly, I'm praying for you and your family.

SLP said...

Not a fun update to type I am sure.
UGH!
X&#!@%$#
Since I 'technically' live in a Zoo, Kalamazoo, I am sending support from all of the crazy animals here :)
Love,
S

Calgaroo said...

OMG!..I absolutely love your blog..very interesting..the writing is awesome..

Anonymous said...

Ask the doctors if he is a candidate for a spinal pump device. It delivers morphine and other drugs in the spinal fluid and may help.

lifeinredshoes said...

Hang in there, we know there's a bigger plan.

pcqpig said...
This comment has been removed by a blog administrator.
Kristiina said...

Oh Kimberly, I'm so sorry...
Kristiina

lifeinredshoes said...

I hope you are enjoying the holidays with your family and friends, that life is giving you a reprive.
I have to admit, every time I click on your site I do so through squinted eyes, afraid of what I may find.